Stories
Join our journalist Gianluca Dotti and our photographer Settimio Benedusi in their journey around the world to meet all the rare people that decided to open up and let us in their lives. Listen to their stories and to find out what rarity means to them.
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Chiara
Chiara was born and raised in Italy and soon diagnosed with beta thalassaemia major, a severe anaemia requiring regular blood transfusions and hospital check-ups.
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Nicola
Nicola showed us how looking ahead and writing a book he overcame the difficulties of living with beta thalassaemia, a blood disorder that can have a significant emotional and psychological impact on one’s life.
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Thomas
Thomas is a small, sweet, and lively child living with determination and courage his young life with Alpha Mannosidosis.
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Camillo
Camillo is a high school student, dreaming of becoming a lawyer or an economist. During his childhood he was diagnosed with beta thalassaemia major, a severe anaemia, also known as Mediterranean anaemia.