Call back to reality

Chiara

Chiara was born and raised in Italy and soon diagnosed with beta thalassaemia major, a severe anaemia requiring regular blood transfusions and hospital check-ups. Facing childhood and adolescence with this kind of condition is a challenge not only for the young patients themselves, but also for the family.
Between one trip and another around Europe, we met her to listen to her story: what she told us demonstrates that a well-functioning healthcare system, and the support of a multidisciplinary team can significantly help with the understanding and management of people with rare diseases.

We took the portrait in the center of the city, full of buildings and cars. However, Chiara’s sweetness prompted me to look for a corner where we could see trees, greenery, and nature. She loves photography and taking a portrait of her holding her camera was a very interesting moment, as if we were photographing each other.

Settimio Benedusi, the photographer

PHOTOGRAPHER

Settimio Benedusi

INTERVIEWER

Gianluca Dotti

DISEASE

Thalassaemia