Stories
Join our journalist Gianluca Dotti and our photographer Settimio Benedusi in their journey around the world to meet all the rare people that decided to open up and let us in their lives. Listen to their stories and to find out what rarity means to them.
Join our team on a journey across the world to meet the people who decided to open up and let us into their lives. Our mission to capture the essence of these powerful encounters has involved a team of dedicated professionals, including journalist Gianluca Dotti, photographer Settimio Benedusi, director Gianpaolo Bigoli, and photographer Marco Gualazzini.
Listen to the stories of the people they met, and discover what rarity means to them.
Artem
Artem is an IT product manager living with Epidermolysis Bullosa. Determined to create the life he wants, he and his wife took a bold leap, moving from Russia to Uzbekistan for a fresh start. Now, his days are filled with meaningful work, travel, and the adventures they share together. Resilience, determination, and love have helped Artem build the life he chose to live.
Linda
Linda is a licensed marriage and family therapist, born with Fabry. She knows that living with Fabry is much more than taking care of the physical body; it is also about caring for and cultivating mental well-being. Today, her work with clients also helps her live with it: not only its toll on the body, but its weight on the mind.
Kirill
Kirill is a Russian boy. His hearing began to fail at age four, and nobody could explain why until he was seven, when he was finally diagnosed with Alpha-mannosidosis. Not only did the diagnosis give his mother a way to ease his daily life, but it also helped her grow much stronger.
Katka
Katka has dreamed of making a living through music since her teenage years. Today, she’s a saxophone player, and although living with Epidermolysis Bullosa brings significant daily challenges, especially with her hands, she has turned her passion into a profession.