Alexandru

“Who can empathize with your suffering more than someone who is experiencing the same suffering?”​

Since he was a kid, Alexandru faced several unexplained symptoms that had a significant impact on his daily life. Then, one day, he found the diary of someone experiencing those same symptoms and this was a turning point:    he finally got the answers he had spent so many years looking for. The diagnosis of Fabry disease not only helped him make sense of everything he had been through, but also pushed him to take action, leading him to found the Fabry disease Patients Association in Romania. Through this NGO, he has created a space for connection, advocacy, and mutual support among people living with this rare condition. His journey, always supported by his wife, inspires others to speak up and keep moving forward.