This website and It’s Rare For Me project is organised and funded by
Chiesi Global Rare Diseases

This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases

Sebastian

“I’m not willing to let this disease be a barrier.”

Sebastian lives in Cluj-Napoca, where he had moved from his hometown to study architecture. After three years, his life took an unexpected turn when he started experiencing vision issues that turned out to be symptoms of LHON, a rare condition that leads to central vision loss. Forced to abandon his studies, he made the difficult choice to let go of a long-held dream and start over. He reinvented himself, finding a new passion that later became his job. Throughout it all, it was also the unwavering support of his family and friends that helped him find the strength to keep moving forward.

PHOTOGRAPHER

Marco Gualazzini

DIRECTOR

Gianpaolo Bigoli

DISEASE

LHON

CHIESI Farmaceutici S.p.A.- VAT IT 01513360345 – Company’s Capital: Euro 75.000.000 Companies Register Office – Parma N.15739 REA: 159271

For Patients: In case of need to report an adverse drug reaction/special situation with medicinal product, please refer to your physician, asking him to fill in and submit the relevant case report to the concerned health authority, according to the pharmacovigilance requirements in force in your country. Nevertheless, please be kindly reminded that each patient can directly report any such cases directly to the national reporting system.

For Physicians and other HCPs: In case you want to report an adverse drug reaction/special situation with medicinal product, you become aware of, please report it to your health authority according to the requirements set by the pharmacovigilance legislation.

Date of Preparation: June 2025 | ALL_25_887 | XI-MED-2400001 | PP-G-1375 V6.0