Sarah

“It’s so cool just connecting with another person who was born with the same thing that you were born with, because it just helps you feel not alone.”

Sarah was diagnosed with Alpha-mannosidosis when she was three years and a half. Despite the challenges of living with this ultra-rare disease, she grew up with a happy, glowing spirit and a desire to help others. She started a blog to share her story and to connect with people across the world going through the same as her. As she says, “It’s just in my bones to be ambitious and to just constantly be doing something for the greater good.”​