This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
FOLLOW YOUR OWN STAR
Sandra
Madrid,
Spain
“Looking to the future, I know that I don’t want to live a bad life, nor do I want those around me to have a bad life or have to carry a burden for me.”
Envisioning the future is always challenging, even more when living with a rare disease. But Sandra faced her life with a great determination in pursuing her happiness, regardless of the impact of her condition.
In her path with Fabry Disease, Sandra has met people that have enriched her life. People she would never have crossed paths with otherwise. Because of this, she is always willing to help others, because this helps her too.