This website and It’s Rare For Me project is organised and funded by
Chiesi Global Rare Diseases

This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases

This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases

My future in my hands

Nicola

A positive attitude towards one’s clinical condition – regardless of its severity – is the best way to embrace life. Conversely, stopping dreaming and planning the future means taking a dark path. This is the heart of the thought of Nicola: we met him on the banks of the river Rhine in the center of Cologne, Germany.
With a diagnosis of beta thalassaemia, a blood disorder that can have a significant emotional and psychological impact, his choice has always been clear: look ahead. Even if determination may not be enough to overcome all the difficulties, everyone has the right to continue to dream. And no one can – or has the right to – take it away from anyone.

We flew to Germany for Nicola’s portrait and have seen how proudly and lovingly he held the book he wrote in his hands, on his heart. From his attitude, we could see how proud he is of himself for having been able to overcome the difficulties he faced in his life.

Settimio Benedusi, the photographer

PHOTOGRAPHER

Settimio Benedusi

INTERVIEWER

Gianluca Dotti

DISEASE

Thalassaemia

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PP-G-1375 V6.0, Date of preparation: December 2023 | ALL_23_411, XI-MED-2400001 | June 2025
Date of preparation: April 2025 | ALL_25_762, Date of preparation: April 2025 | ALL_25_792, Date of preparation: April 2025 | ALL_25_808, Date of preparation: June 2025 | ALL_25_865

Date of Preparation: June 2025 | ALL_25_887 | XI-MED-2400001 | PP-G-1375 V6.0