This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
IN THE HANDS OF GOD
Moisés & Maximiliano
La Guajira,
Colombia
“I just hope they always feel at peace, loved, and the support from their parents so they never feel alone. I’m full of faith and hope they have a long life ahead. I’m fighting to make it possible. This is a 24/7 job, eight days a week, but it is wonderful.”
(Karen, mother of Moisés & Maximiliano)
Moisés and Maximiliano were diagnosed at a very young age with Homozygous Familial Hypercholesterolemia (HoFH), a rare condition that affects cholesterol levels from birth.
What began with small, almost unnoticed signs quickly turned into a period of deep uncertainty for their family, made even more overwhelming by the lack of clear information and a life expectancy that seemed frighteningly limited. Determined to find answers, their mother kept searching until she connected with a patient association that helped bring clarity and, most importantly, a renewed sense of hope.
Today, Moisés and Maximiliano are growing up in a home where their condition is not seen as a limitation, but as part of a shared way of life—one shaped by care, awareness, and the desire to move forward together.
DISEASE
HoFH
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