Mandie

“I’m Mandie. I’m a wife, a mother, poet, an artist […] for me sometimes breaking things means that you can put them together in a more beautiful pattern”

Despite the challenges of living with Fabry Disease, Mandie doesn’t let the condition define who she is. Mandie turned her personal experience into the strength she needed to advocate not just for herself, but for her family and the entire community.
With several family members also diagnosed, the journey hasn’t been easy but facing it together with the loved ones brings strength, understanding, and a clearer path forward.