Luis David

“When he was a kid, he was hiding his hands a lot because he didn’t want people to stare at him, and I as his sister didn’t like it. But now he’s grown confident, he accepts that EB is a part of him, and he can tell people how he is a survivor and a warrior.”
(Maria Regina, Luis’ sister)​

Luis David is a young man who was diagnosed with Epidermolysis Bullosa soon after birth. Despite the challenges of living with a rare disease, Luis radiates positivity and has a strong determination to live life to its fullest. He works in a coffee house, trains regularly at the gym and is an electronic music DJ in the surrounding areas. He is also an active advocate, leveraging social media to raise awareness about his condition, becoming a great inspiration for anyone living with EB, especially young people going through adolescence. Surrounded by the love of his friends, family and deeply supported by his sister Maria Regina, Luis has grown into a confident young man. He has fully embraced his identity, proving to everyone that life is shaped by his dreams and passions, not by the disease he lives with.​​