This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
IT’S INCREDIBLY CHALLENGING, BUT IT CAN BE DONE
Katka
Prague,
Czechia
“I think it’s a powerful lesson in life. It gives you a completely different perspective. You learn to appreciate good health when you have it, and you discover just how much you’re capable of overcoming when you don’t.”
Katka has dreamed of making a living through music since her teenage years. Today, she has turned that dream into reality as a saxophonist, composer, singer, and music teacher. Although living with Epidermolysis Bullosa brings significant daily challenges, she has never let it stand in the way of her passion. On stage, Katka feels completely at home. The energy and adrenaline of performing live allow her to immerse herself in the music and leave her worries behind.
Proud of the life and career she has built, Katka feels fortunate to have the use of her fingers, enabling her to continue playing, creating, and living the dream she once imagined for herself.
DISEASE
EB
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