This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
I DON’T WANT TO GIVE UP
Jonathan
Long Island,
New York
“One of the things I like to say is you don’t choose the games on your schedule, right? I can’t choose my opponent. I can’t choose what’s happening. But what I can do is I can choose to either give up or not give up. And I don’t want to give up.”
Jonathan is the kind of person who, when faced with a challenge, stays grounded and finds a way forward. This inner strength is what helped him face the long and difficult journey that lasted 26 years, from the onset of the first symptoms to the moment he was diagnosed with a rare disease named acromegaly.
Today, he is a proud father of four and an active advocate. The support he received from patient groups—where he found understanding, connection, and solidarity—was one of the most valuable resources during his most difficult times. That experience now fuels his dedication to helping others with acromegaly.