This website and It’s Rare For Me project is organised and funded by
Chiesi Global Rare Diseases

This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases

This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases

BEHIND EVERY SUPERHERO, THERE ARE SUPER PARENTS

Jakob​

Jakob is “the most energetic little ball of joy”, as his parents describe him. Living with ADA-SCID means that anything around you might be a threat because of your weakened immune system. Nevertheless, “we parent of children with conditions, we do our best to make them fit”. It is not easy, but Jakob’s parents are doing their best to offer their son a normal life and to have an opportunity to live. Despite the challenges, their household is full of love, and they keep supporting each other. ​

DISEASE

ADA-SCID
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