This website and It’s Rare For Me project is organised and funded by
Chiesi Global Rare Diseases

This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases

This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases

My story on stage

Gianfranco

“Don’t forget to look to the East, because the sun will always rise and life deserves to be lived to its fullest.”

Despite almost total blindness and the challenges LHON presents, Gianfranco found the strength to reinvent himself and become an actor.
He brings his story and his uniqueness on stage, enabling people to see beyond prejudice, beyond mistrust and beyond the belief that we can rely solely on our eyesight.

What an exciting meeting that was with Gianfranco! A great passion of his, that for the theater; but above all, an enormous passion for Life, with an explosive energy. As a blind man he moved around the stage with a mastery not so much physical but above all emotional mastery that was enviable and contagious. We spent a lot of time talking, and wished we could have stayed even longer. I hope to see you again soon Gianfranco!

Settimio Benedusi, the photographer

PHOTOGRAPHER

Settimio Benedusi

INTERVIEWER

Gianluca Dotti

DISEASE

LHON
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