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Being the strong one


There are medical conditions that totally change your life, in front of which it is essential not to pause your own life, but to react and to find a way to move forward despite it all. This is the story of Eliane, from the Netherlands, diagnosed with Leber’s Hereditary Optic Neuropathy (LHON), a rare degenerative disease of the optic nerve that is characterized by a progressive central vision loss1. It took her 7 years to fully accept her condition, through a difficult and painful path, but now she can share her experience of taking back the control of her life. Thanks also to the invaluable role of her daughter.

How moved Eliane was with her daughter next to her when I took her portrait! The Dutch cottage that is their home is neat, clean, and extremely cozy: our group from Italy invaded it to tell the story about their relationship, so strong, beautiful and unique.

Settimio Benedusi, the photographer
Settimio Benedusi


Gianluca Dotti