Eliane

There are medical conditions that totally change your life, in front of which it is essential not to pause your own life, but to react and to find a way to move forward despite it all. This is the story of Eliane, from the Netherlands, diagnosed with Leber’s Hereditary Optic Neuropathy (LHON), a rare degenerative disease of the optic nerve that is characterized by a progressive central vision loss¹. It took her 7 years to fully accept her condition, through a difficult and painful path, but now she can share her experience of taking back the control of her life. Thanks also to the invaluable role of her daughter.