This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
This website and It’s Rare For Me project is organised and funded by Chiesi Global Rare Diseases
A FAMILY’S SACRIFICE, AN ADVOCATE’S MISSION
Ahsan
Oregon,
USA
“We have the same human beings everywhere in the world, with the same emotions, with the same feelings. It’s just a different place, but we are all the same.”
(Hassan, Ahsan’s father)
Ahsan is originally from Pakistan. He was diagnosed with Homozygous Familial Hypercholesterolemia (HoFH) at the age of seven, after his parents noticed unusual cholesterol deposits on his knees. The diagnosis marked the beginning of an extremely difficult period for the family, who were told that very little could be done for their son and that they should simply try to make the most of the time they had with him.
Refusing to give up, Ahsan’s father began searching for answers online and reached out to an international Familial Hypercholesterolemia
community forum. What Ahsan’s family found there was far more than medical advice: the unexpected kindness and support of strangers from the other side of the world gave them the courage to leave Pakistan in search of treatment options and a healthier future for their son.
Today, Ahsan is an outgoing and energetic boy who loves sports, hoverboards, and making new friends. Surrounded by love and embraced by a caring community in the U.S., Ahsan continues to grow up, showing how family can sometimes extend far beyond blood ties and change the course of someone’s life.
DISEASE
HoFH
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